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What We Do...
The Cystic Fibrosis
Foundation
raises
funds to assist families of children and
young adults with Cystic Fibrosis.
We
personally contribute to the Cystic Fibrosis
Foundation research directed at increasing
and maintaining the quality of
life for the children inflicted with Cystic
Fibrosis, while continuing the search for the
cure of this genetic disease.
We inform others about the work of the
Cystic Fibrosis Foundation and encourage
their participation with that foundation in
whatever means available to them, whether it
be funding or volunteering their time and
energy.
What Is Cystic
Fibrosis...
-
Cystic fibrosis or CF,
also called mucoviscidosis, is a genetic
disease affecting approximately 30,000
children and young adults in the United
States.
-
A defective gene
causes the body to produce an
abnormally thick, sticky mucus that clogs
the lungs
and leads to life-threatening lung
infections.
-
These thick secretions also
obstruct the pancreas, preventing digestive
enzymes from reaching the intestines to help
break down and absorb food.
-
The mucus also
can block the bile duct in the liver,
eventually causing permanent liver damage in
approximately six percent of people with CF.
Our
Beginning...
This lofty
goal was born in late 2005. While
my wife was pregnant with our first child, we discovered through
genetic testing that we are both carriers
of Cystic Fibrosis DNA.
This gave our unborn child a 25% risk of
having Cystic Fibrosis or a 50% risk of
being a carrier of the Cystic Fibrosis DNA.
We were very fortunate, our son’s genetic
testing while he was still a fetus proved
that he was the other 25%; no Cystic
Fibrosis DNA what so ever.
Cystic
Fibrosis is not new to my family. My
wife had an
uncle that lived only to be 8 and ½;
remember, at that age you count every day.
She grew up knowing all about Ronnie, and the
impact of my personal situation has made me
determined to do all that I can to help find
the cure for Cystic Fibrosis.
Ronnie Harris October 18, 1957 - May
7, 1966
An inspiration on many levels, to many
people, in such a short time.
Our
Mission...
The cost
of medications, hospitalizations, treatments and supplies to increase the
quality of life for these children is
phenomenal. Our goal is to
contribute funds to provide assistance to the
families of children with Cystic Fibrosis
as well as inform others that may add to the funding for the
research to cure and eradicate this disease.
Our
Thanks...
We are very
grateful for the support of the Cystic
Fibrosis Foundation by businesses and
individuals. The Cystic Fibrosis
Foundation is able to make a difference
in the lives of children today and work to
give them a more secure future.
We wish to thank the
owners of the following businesses for their
dedication to the Cystic Fibrosis
Foundation.
Da Vinci Creative
Consultants
Java Queen International
Inspirational Marketing
Koko Travel
Martini Social Club
Online
Marketing Secrets
Critical Care 4 Marketing
We-Deliver-Hits.com
Join The Cystic Fibrosis Foundation In
Their Mission...
If you are aware of
anyone that may be interested in joining our
mission and that of the Cystic Fibrosis
Foundation, please refer them to the Cystic
Fibrosis Foundation in the city nearest
them.
Please join us in our vision;
contribute,
in what ever fashion you are able, to finding a
cure for Cystic Fibrosis.
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